Country Music And Brain Research Come Together At Nashville Summer Camp

Jul 31, 2017
Originally published on August 2, 2017 7:55 am

The Grand Ole Opry in Nashville, Tenn., is country music's Holy Land. It's home to the weekly radio show that put country music on the national map in 1925. And it's where this summer, 30 people with Williams syndrome eagerly arrived backstage.

Williams syndrome is a rare genetic disorder that can cause developmental disabilities. People with the condition are often known for their outgoing personalities and their profound love of music. Scientists are still trying to figure out where this musical affinity comes from and how it can help them overcome their challenges.

That's why 12 years ago, researchers at Vanderbilt University set up a summer camp for people with Williams syndrome. For a week every summer, campers come to Nashville to immerse themselves in country music and participate in cutting-edge research.

This isn't the only summer camp for people with Williams syndrome, but it is unique in its distinctive country flair. It's organized by the Vanderbilt Kennedy Center, whose faculty and staff focus on developmental disabilities. Eight years ago, the Academy of Country Music's philanthropic arm, ACM Lifting Lives, started funding the program.

Campers spend the week meeting musicians and visiting recording studios, even writing an original song. This year, they teamed up with one of country's hottest stars, Dierks Bentley, on that. And they get a backstage tour of the Grand Ole Opry led by Clancey Hopper, who has Williams syndrome herself and attended the Nashville camp for eight years before applying for a job at the Opry.

"I honestly never thought that I would have this dream job that I have," she says. "And just to share it with people who are so passionate about music and life itself — it's just great."

Hopper is a master at pumping up the crowd— especially this crowd, who cheer and gasp enthusiastically as she shows them the dressing rooms, the stage and even the numbered mailboxes where Opry members get fan mail.

"We've got 192 — that is Miss Carrie Underwood," she points out. "176 is Blake Shelton."

Sarah Myers, a 23-year-old camper, calls the whole experience a dream come true. "I listen to country music every day, because when I listen to it, there's a smile that I can't take off of me," she says.

People with Williams syndrome often express great fondness for all kinds of music, not just country. Even at a young age, some parents notice that certain songs tend to soothe them particularly well, says Miriam Lense, who studies music and the brain at Vanderbilt and conducts research with the camp.

"You certainly get stories about parents saying that the first time their child started really vocalizing or using words was around song — singing along or filling in the words," Lense says.

There can also be an opposite reaction: When people with the disability don't like a sound, it can seem almost painful, she says.

The exact reasons for this musical sensitivity are still a mystery, but scientists have identified a neurological component. When people with Williams syndrome listen to music, the visual area of the brain is stimulated more so than in other people, Lense says, "which suggests for at least some people with Williams syndrome, one of the reasons music might be so powerful is because it is this incredibly multisensory, very rich experience."

That particular finding came out of a study conducted with camp participants. Researchers are also looking into non-musical ways of helping people with the disability. For example, they now hold mindfulness classes to help campers cope with anxiety — another common characteristic.

Jared Glenn, a 32-year-old camper from Detroit, has noticed a change in himself. "I used to be more hyper and wild, but now I'm more calm and chill," he says.

Backstage at the Grand Ole Opry, the campers try to channel that calm as they approach the week's grand finale: performing the song they wrote on stage, before an audience of thousands. Some breathe deeply to steady their nerves.

When they're called to the stage, they're joined by another country artist, Chris Young. Together, they belt out "I Love Big," a song about themselves and their enthusiasm for the world.

Weatherman's calling for rain and cloudy skies

But in my heart it's always sunny and 75

Been that way ever since I was a kid

That's just me, I love big.

The way I laugh, the way I smile

The way I hug a friend I haven't seen in a while

It's who I am, it's how I live

I love big

Go be brave, go be brave

Don't be afraid going for the gold

It's who we are, it's how we live

I love big

In the last chorus, one camper in the back goes a bit rogue, breaking formation to wave his arms overhead in time with the music. The audience loves it and follows his lead — and at the end, gives the campers a standing ovation.

Copyright 2017 Nashville Public Radio. To see more, visit Nashville Public Radio.

AUDIE CORNISH, HOST:

People who have a rare genetic disorder called Williams syndrome are known for their outgoing personalities and a profound love of music. Scientists are still trying to figure out where this musical affinity comes from and what it could mean for overcoming challenges. It's why researchers set up a summer camp for people with Williams syndrome in Nashville. They're immersed in country music for a week. Emily Siner of member station WPLN has the story.

EMILY SINER, BYLINE: The Grand Ole Opry is country music's Holy Land. It's home to the weekly radio show that put country on the national map in 1925. And it's where this summer, 30 people with Williams syndrome eagerly arrived backstage.

CLANCEY HOPPER: Welcome to the Grand Ole Opry. We're so excited to have you all here this evening...

SINER: Clancey Hopper is their tour guide. Hopper also has Williams syndrome and attended the camp for eight years before applying for a job at the Opry. And it's clear why she got it. She's a master at pumping up the crowd, especially this crowd. Hopper starts by showing them the numbered mailboxes where fans can send letters to Opry members.

HOPPER: Oh, we got 192. That is Miss Carrie Underwood.

UNIDENTIFIED CROWD #1: Ooh.

UNIDENTIFIED WOMAN: Wow.

HOPPER: We got 176, is Blake Shelton.

UNIDENTIFIED CROWD #1: Ooh.

UNIDENTIFIED WOMAN: Wow.

SINER: This isn't the only summer camp for people with Williams syndrome, but it is unique in its distinctive country flair. The camp is organized by the Vanderbilt Kennedy Center in Nashville, which studies developmental disabilities. Several years ago, the Academy of Country Music started funding the program. So campers spend the week meeting musicians and visiting recording studios. This year they even wrote a song with one of country's hottest stars, Dierks Bentley. The grand finale is performing that song this very night live on the Grand Ole Opry. Twenty-three-year-old Sarah Myers, one of the campers, calls it a dream come true.

SARAH MYERS: I listen to country music every day because when I listen to it there's this smile that I can't take off of me.

SINER: People with Williams syndrome often express a deep affinity for all kinds of music. Even at a young age, their parents notice that certain songs tend to soothe them particularly well.

MIRIAM LENSE: You certainly get stories about parents saying that the first time their child started really vocalizing and using words was around songs, so sort of singing along or filling in the words.

SINER: Miriam Lense is a researcher at Vanderbilt University who studies music and the brain. She says there's also the opposite effect. When people with the disability don't like a sound, it can be almost painful. The exact reasons for this musical sensitivity are still a mystery, but scientists have at least identified a neurological component. When people with Williams syndrome listen to music, Lense says it stimulates the visual area of the brain.

LENSE: Which suggests that for at least some people with Williams syndrome, you know, one of the reasons music might be so powerful is because it is this incredibly multisensory, very rich experience.

SINER: This particular finding actually came out of a study conducted at the summer camp because in addition to touring country music's hotspots, campers also participate in cutting-edge Williams syndrome research. The camp is also looking into nonmusical ways of helping people with the disability. They now routinely teach mindfulness classes to help campers cope with anxiety, another common characteristic. Thirty-two-year-old Jared Glenn, a camper from Detroit, has noticed a change for himself.

JARED GLENN: I used to be, like, really hyper and, like, wild. But I think I'm more calm and, like, chill - like, really chill.

SINER: And backstage at the Grand Ole Opry, the campers are trying to channel this calm that they've learned as they wait to perform their song. Some are breathing deeply to steady their nerves. And then...

(SOUNDBITE OF ARCHIVED RECORDING)

UNIDENTIFIED MAN #1: They are going to make their way to the stage and join Chris Young.

UNIDENTIFIED MAN #2: One, two, three.

SINER: The song the campers wrote is called "I Love Big." It's about themselves and their enthusiasm for the world.

(SOUNDBITE OF ARCHIVED RECORDING)

UNIDENTIFIED CROWD #2: (Singing) I love big. Go be brave. Go be bold.

SINER: In the last chorus, one camper in the back goes a bit rogue. He breaks formation to wave his arms overhead in time with the music. But the audience loves it and follows his lead.

(SOUNDBITE OF ARCHIVED RECORDING)

UNIDENTIFIED CROWD #2: (Singing) I love big.

(APPLAUSE)

SINER: You don't need a formal research study to figure this one out. Getting a standing ovation from thousands of people at the Grand Ole Opry clearly feels really, really good. For NPR News, I'm Emily Siner in Nashville.

(SOUNDBITE OF ARCHIVED RECORDING)

UNIDENTIFIED CROWD #2: (Singing) Never met a stranger in my life. Got a hand ready to shake or high-five. Come on over here, friend, and bring it on in. Don't be afraid, I love big. Weatherman's calling for rain and cloudy skies, but in my heart it's always sunny and 75. Been that way ever since I was a kid... Transcript provided by NPR, Copyright NPR.